Vlogger Nikki Lilly discusses filming TV show about living with chronic illness

YouTuber Nikki Lilly has opened up about filming her life with a chronic illness for a brand new TV present, explaining why it is essential to indicate the “tougher bits of life”.

14-year-old Lilly was recognized with arteriovenous malformation (AVM) when she was six years previous, a uncommon situation that usually seems within the head, neck or backbone.

AVM is discovered when there’s an irregular connection between arteries and veins, and may trigger swelling and life-threatening nosebleeds to happen.


When Lilly was eight years previous, she determined to launch a YouTube channel to boost consciousness of individuals with ‘seen variations’ similar to her personal, and to create movies on quite a lot of matters, similar to magnificence, music and baking.

Having gathered greater than half one million subscribers on the video-sharing platform, the vlogger has not too long ago taken half in a TV programme referred to as My Life – I Will Survive, which is being aired on CBBC on 11 February.

Whereas being interviewed on ITV’s This Morning by Holly Willoughby and Phillip Schofield, Lilly spoke about being hospitalised final June on account of her sick well being, an occasion that has been documented within the TV episode.

“I used to be very poorly,” the vlogger stated.

“I truly ended up being emergency admitted to hospital as a result of I used to be bleeding actually profusely they usually needed to put me in a sleep-induced coma for eight days to stabilise the bleeding and simply let my physique relaxation often because I might misplaced a lot blood.”

{The teenager} defined that she had then undergone surgical procedure in August, in December and has one other surgical procedure scheduled for this summer time.

Lilly described the interval final summer time as a “scary” time for her and her household.

Excluding the surgical procedure that adopted her emergency hospitalisation, which Lilly wished to maintain non-public for her and her household, the YouTuber was blissful for the cameras to comply with her in order that viewers might see each the highlights and hardships she experiences.

“I believe it is actually essential to indicate the tougher bits of life, as a result of I really feel like generally even with social media it may be a filter for under the nice elements of life,” she said.

Lilly continued, explaining how social media can usually make individuals really feel as if they should “purvey an ideal life”, an idea that is extremely unrealistic.


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“Me dwelling with a power sickness, it’s exhausting generally and I really feel like some children and even adults overlook how exhausting life will be,” Lilly added.

“So I wished to indicate not solely the extra optimistic elements after all, however the tougher elements.”

My Life – I Will Survive with Nikki Lilly is being proven on CBBC on Monday 11 February at 5:30pm.

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